Sunday, February 9, 2014

72 Hour EEG (Day 3)

The bed head/matted down/sticky mummble of hair picture.
(This pic was taken at 3am soo I have no idea why it's green.)  
I know you all were waiting on pins and needles to find out what happened today. Well, it hasn't gone all to fantastic. I reached my breaking point late last night and I'm not guaranteeing all the wires will stay intact tonight... I might be pulling them out soon. It's not that this is painful or anything it's just not fun. It's itchy and
My new cover all the wires so they don't fall off look.
hot and the gauze fell off last night so it's a sticky handkerchief hair mess thing with wires. It's not attractive. I slept with exposed wires last night because the gauze fell off and I slept over at my Grandparent's house and I couldn't find anything to rewrap my head with so I slept without it covered. Terrible idea. They use a special glue to keep all the wires attached to my head and between the head glue and the gauze I've managed to work up the worst bed head/matted down/ sticky mummble of hair you have ever seen and it's not pleasant to have attached to me right now. So that was fun. Because I didn't get much sleep at all last night I've been really tired, cranky, and moppy all day which hasn't been fun for the people around me. My mom and I went and got our nails done which felt really good and they're really sparkly now. And then I just kinda sat around literally doing nothing. And let me be the first to tell you this, but sitting there doing nothing
My sparkly pink nails in honor of Valentines Day...
(it took 7 tries to get this picture.) -____- 
and giving yourself the opportunity to think about how not enjoyable this EEG is, is what pushes you over the ledge. I just broke down in tears. There was now consoling me, or calming me down I just needed to cry so I did. Something very therapeutic for me is cooking/baking so I made food, dinner to be exact. Than I baked 24 cupcakes and 16 chocolate chip cookies. And then I locked myself in my room to stare at the wall again because I obviously didn't learn my lesson the first time. I am so done with this EEG thing I can't even put it into words how annoyed I am. So I'm going to go to sleep now and hope that tomorrow morning takes a while to get here so I can just sleep and not think about nasty hair and the wires lost with in it.

Keep your head up and keep yourself busy,
Ellie <3

And for your enjoyment and to keep you smiling... A CAT PICTURE!! 

Your welcome.

Saturday, February 8, 2014

72 Hour EEG (day 2)

My face looks awkward. But this is just after I woke up from my first night with this bad boy on. 

     My first night with the whole EEG thang on went fine I guess. I kept waking up and despite what they tell you this isn't the most comfortable thing to sleep in. I did it though. Like I said yesterday  it's best to plan as many things as you can to keep yourself occupied and keep your mind off of the the wires attached to your brain. So after breakfast we set off to play a few rounds of laser tag which let me be the first to tell you, it's extremely difficult to do so. I still came in first and it was a great distraction. I took about an hour to decompress and relax and then my head started itching so I started some pinterest projects that I had found. My first project was to bleach a quote unto a shirt with a bleach pen. That actually turned out really cute. I'll post a picture of it later. My second project is a candy dish with glitter on the inside. It's still drying and it's not quite turning out like the picture I saw so I might have to do some re-do work on that tomorrow. Now it's dinner time. I'm almost done with my first full day. Honestly, I've made it a lot longer than I though i would. I'm in high spirits still and although my head is hot and itches I'm doing alright. 

Keep your head up and your spirits high,
Ellie <3

Friday, February 7, 2014

72 Hour EEG (Day 1)

     I was opposed to this test from the very beginning. I had a 24 hour EEG done in August, the first time I was admitted to the hospital. An EEG is basically charts your brain waves and anything abnormal is considered "seizure activity". My neurologist said that the 24 hour EEG showed no signs of my episode being a seizure. So I don't understand why we're redoing this test, but for a longer period of time. It's also frustrating that I'm now 5 days episode free, so if I continue on this trend of no episodes this test will show NOTHING because they won't have anything to look at. Any who an EEG isn't painful it's just extremely uncomfortable. My head is now really heavy which is an unusual feeling that I'm not a fan of. Also because my head is wrapped up in so much gauze and glue with tape or something my head over heats really really fast. It's SUPER itchy too and I can't itch it because it's like the Great Wall Of Gauze all up on my head. Now although this thing is super ugly I'm still going out with this bad boy on. I will not let this hold me back. Laser tag?? I'm doing it. Movies?? Done. Hanging out on the Las Vegas Strip?? It's happening. I wear my Despicable Me knit hat over the ugly a$$ gauze and I pretend like it's not there. I highly recommend if you get a 72 hour EEG and it's safe for you to go out plan as much as you possibly can to entertain yourself. It helps take your mind of the wires that are connected to you. I just keep telling myself I can do this... maybe.

Keep your head up, because you can do this,
Ellie <3
Super ugly gauze wrap that makes your head itchy.

All my wires. They're like four feet. *Tip* If you do get an EEG place the whole thing in like a draw string back pack. That way all the wires and the pack that comes with it are contained. Trust me it helps. 
I put my minion beanie over it when I go out of the house. I find more people focus on how awesome my beanie is than the wires sticking out of my brain. 

Tuesday, February 4, 2014

Medical Alert Bracelet

*Before I begin this post I must say that these opinions are solely my own. I am not being paid to say anything in this post, I am just extremely happy with this product and I want everyone to feel just as comfortable as I am with wearing a medical bracelet.*

     I have been wearing a medical bracelet since the Summer of last year. I was starting to pass out a lot and a common problem I was seeing was the fact that it was hard to ID me and get a parent's phone number from me when I was just coming out of an episode. Some one had suggested wearing a bracelet before, but I thought they were all clunky and not practical and I didn't think anybody would look at it if I passed out. But I looked around for something I liked. I came across just a silicon band that I could put my name and my mom's number on and I ordered that. I figured I would only wear it while working out or when I wasn't with my parents. But it was ugly and I'm not a big fan of ugly so I stopped wearing it all together. Then one day while reading blogs from other people I stumbled upon a post about medical alert bracelets and how they were having the same problem as I. I kept reading to find out about Lauren's Hope. It's a company that combines safety with style. I glanced around their website and started finding bracelets that I fell in love with. And I loved that I could make them my own by mixing bands with my alert plate. I ordered my first bracelet in July. I wore it all day everyday, and two days after I got it in the mail, an EMT used it to locate my mother while I was unconscious. I like change. I'm always changing my ear rings, my style and now I'm constantly changing my bracelet. I've grown to a collection of six bands and I change them as often as I feel. I just received my newest one in the mail (it's glow in the dark!!) And I love it. So if you're in the market for a new medical alert bracelet/necklace or maybe you don't have one and you think you should try Lauren's Hope. I've been wearing a medical alert bracelet every day since I ordered my second one and trust me it's come in really really handy a few times already. And like they always say it's better to be safe than sorry. So what does your medical alert look like?

Keep your head up and stay safe,
Ellie <3
4 out of 6 of my bracelets 

The one I'm currently wearing is glow in the dark with a purple plate. 

Most of my bracelets live on my dinosaur by my bed until I decide to wear a new one.