Friday, February 7, 2014

72 Hour EEG (Day 1)

     I was opposed to this test from the very beginning. I had a 24 hour EEG done in August, the first time I was admitted to the hospital. An EEG is basically charts your brain waves and anything abnormal is considered "seizure activity". My neurologist said that the 24 hour EEG showed no signs of my episode being a seizure. So I don't understand why we're redoing this test, but for a longer period of time. It's also frustrating that I'm now 5 days episode free, so if I continue on this trend of no episodes this test will show NOTHING because they won't have anything to look at. Any who an EEG isn't painful it's just extremely uncomfortable. My head is now really heavy which is an unusual feeling that I'm not a fan of. Also because my head is wrapped up in so much gauze and glue with tape or something my head over heats really really fast. It's SUPER itchy too and I can't itch it because it's like the Great Wall Of Gauze all up on my head. Now although this thing is super ugly I'm still going out with this bad boy on. I will not let this hold me back. Laser tag?? I'm doing it. Movies?? Done. Hanging out on the Las Vegas Strip?? It's happening. I wear my Despicable Me knit hat over the ugly a$$ gauze and I pretend like it's not there. I highly recommend if you get a 72 hour EEG and it's safe for you to go out plan as much as you possibly can to entertain yourself. It helps take your mind of the wires that are connected to you. I just keep telling myself I can do this... maybe.

Keep your head up, because you can do this,
Ellie <3
Super ugly gauze wrap that makes your head itchy.

All my wires. They're like four feet. *Tip* If you do get an EEG place the whole thing in like a draw string back pack. That way all the wires and the pack that comes with it are contained. Trust me it helps. 
I put my minion beanie over it when I go out of the house. I find more people focus on how awesome my beanie is than the wires sticking out of my brain. 

1 comment:

  1. Thanks so much for the great info! I had Frankenstein images going they my brain. Wired for 72 hours is really intimidating. So thanks too for the fashion tip : ) and getting busy!

    I hope your diagnosis is one you can live with and manage. Best, debe